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ZNM – Newsletter 2016 is now available – also in English!

Now, you can download our latest newsletter with reports on the conference in May, our fundraising success, latest research news, he short film on CNM/MTM we made and much more! Check out the English version here. More documents  on our association (newsletters, flyers, etc.) you can find in the download section of our homepage!           … Read more…

Application for research grants now open!

The Myotubular Trust has just opened the call for research projects on centronuclear myopathies. All information (incl. the application forms) can be found on its website. This Seventh Call For Projects will require completed applications by 1700 hours GMT Wednesday 30th November 2016. The awards will be given by May / June 2017. Before, the … Read more…

Please support our association!

ZNM – Zusammen Stark! e. V. (CNM -Together Strong!) is a small association with only 100 members in Germany and the Netherlands. To organize family conference like in Goettingen in 2015 or in Niedernhausen in 2016 and also to contribute money for research (like the 10 000 Euro donation to the Myotubular Trust) we need … Read more…

Donation to the Myotubular Trust

At our membership meeting on May 6 we have decided to donate € 10,000 to the Myotubular Trust, that you so kindly donated to us. This sum will be added to the money that is available for research grants for finding a cure for myotubular myopathy and other centronuclear myopathies in this year’s call. Contributing … Read more…

Film of the Myotubular Trust with German Subtitles

Here is the great film of the Myotubular Trust with German subtitles. It shows, that sponsoring research for a treatment for centronuclear myopathies in deed pays off. All this the Myotubular Trust made possible with donations! Thank you so much Myotubular Trust and donors! We co-operate closely together with our friends of the Myotubular Trust … Read more…

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European Conference

On May 07. and 08., 2016 the European family conference on myotubular myopathy and other centronuclear myopathies takes place in Niedernhausen near Frankfurt, Germany. It is organized together by the Myotubular Trust and ZNM – Zusammen Stark! Information on the conference, the detailed program (incl workshops) and to the registration process you will find here.  … Read more…