2017 Tambach

Family meeting and conference for children and adults with myotubular myopathy and other centronuclear myopathies

All participants / alle Teilnehmer
Group picture from the Family Conference 2016

The German association CNM – Together Strong! e.V. invites you to the family meeting and conference  2017. The family conference offers the affected families in Germany and the Netherlands a unique opportunity to exchange views with other families, and to learn about the latest news on therapies and changes in the care insurance. This year the conference will only be in German language. We are planning an international family conference for 2018 in German and English.

       Balloons start

Fotos Family Conference 2016

 

WHEN. May 5th to 7th 2017
WHERE: Berghotel Tambach in Tambach-Dietharz Thuringia / near Gotha. Price for 2 nights with breakfast per person in a double room: 70 € (single room 90 €). Extra beds are possible.

Children from 0-5 are free of charge, children from 6-12 receive a 30% discount.
Room contingent can be booked until April 6, 2017 under the keyword “ZNM”.

REGISTRATION: Registration form

Attention: The hotel has to be booked separately.

KOSTEN: For members of ZNM – Zusammen stark! e.V. the participation and the 3 meals are free of charge.
All others must pay a participation fee of 34 €, which includes lunch on Saturday (children from 6-12 get 30% discount, children from 0-5 are free of charge). Dinner on Friday and Saturday will cost an additional 20 € for each meal for non-members. Drinks are not included for anyone! Für Mitglieder von „ZNM – Zusammen Stark! e.V.“ sind die Teilnahme und die 3 Mahlzeiten kostenlos.
LANGUAGE German (with no translations)

 PROGRAM

Friday, Mai 5th, 2017

17:00 – 18:00 Dinner
18:00 – 20:00 Annual General Meeting
20:00 – 23:00 Get-Together

Saturday, May 6th, 2017*

8:00 – 9:30 Breakfast
9:30 – 13:00 Presentations  on care and therapies

Here is an overview in German

13:00 – 14:30 Lunch
14:30 – 17:00 Family exchange workshops in small groups, topics: kindergarten, school, therapies, etc
17:00 – 18:00 Group photos and balloons with wishes
18:00 -20:00 Dinner
20:00 – 23:00 Get-Together

* On Saturday there is a fun program for the children and teenagers

 Spiel draußen / playing outside

Children program family confernce 2016

Sunday, Mai 7th, 2017

8:00 – 10:30 Breakfast and Check-out
10:30 – 15:00 Family excursion
15:00 End of the event