ZNM-International-CNM

Auf dieser Seite wollen wir vor zu den anderen Gruppen für ZNM verlinken.
On this page we want to link to other groups for CNM in other languages.

First to closed  groups on Facebook (you have to convince the admins…)


Interne Gruppe des Vereins ZNM – zusammen stark! e. V.


Myopathie myotubulaire / Myopathie centronuclaire en francais


F.I.M.M. – Famiglie Italiane Miopatie Miotubulari e Centronucleari MTM-CNM


Miopatia miotubularna /centronuklearna – grupa wsparcia


Grupo em português sobre miopatia miotubular e outros miopaties centronucl


Miopatía Miotubular (MTM) – Miopatia centronuclear (CNM)


MYOTUBULAR MYOPATHY

 

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Homepages in the Internet/ Open Facebook pages:

Deutsch

Offene Facebook-Seite: https://www.facebook.com/znmstark/

You-Tube-Kanal: https://www.youtube.com/znmzusammenstarkorg
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Croation/Hrvatski


Miotubularna miopatija hrvatski rjecnik

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Italian/ Italiano


Miopatia miotubulare en italiano

You-Tube-Channel en Italiano

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Spanish/ castellano


Sobre la miopatia miotubular

You-Tube-Channel en castellano

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Polish / Polskie:


https://www.oswoicmiopatie.com/

You-Tube-Channel in Polish
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English


Our partner organisation in the UK: The Myotubular Trust

in addition on our page most of the information is available also in English

We have also have an English playlist on our you-tube-Channel:
https://www.youtube.com/playlist?list=PLaG7cwgnel-HFSJroBWKv1vUqPYRlze5J

 

In addition please refer to:
http://www.znm-zusammenstark.org/en/other-organizations/

for links to  the organizations in the USA (Joshua Frase Foundation, MTM-CNM-Family Connection, RYR1-Foundation, WillCure) with whom we are also in direct contact and continuous co-operation)