Clinical trial for gene therapy has begun!

This week Audentes Therapeutics has announced that the first patient in the USA has been dosed with AT132. Thus the clinical trial for gene therapy has begun. A very important mile stone has been reached. We are very happy and excited about this. It was worth it that parents world wide did not simply accept … Read more…

20,000 € for the research grants of the Myotubular Trust

We are very happy that on May 5, 2017 the members’ assembly of ZNM – Zusammen Stark! has decided to continue the support for the research grants of the Myotubular Trust.  After 10,000 € a year ago and 15,000 € in January 2017 this time we increased the sum again by 5,000 €. The next … Read more…

Vistit to the IGBMC and Dynacure in Strassbourg

On March 24, 2016, members of  ZNM – Zusammen Stark e. V. and The Myotubular Trust met at IGBMC in Strasbourg to visit the laboratory of Jocelyn Laporte, where Myotubular Trust have been funding projects for a number of years. We had a tour of the IGBMC lab with Jocelyn Laporte, Belinda Cowling and Johann … Read more…

ZNM – Newsletter 2016 is now available – also in English!

Now, you can download our latest newsletter with reports on the conference in May, our fundraising success, latest research news, he short film on CNM/MTM we made and much more! Check out the English version here. More documents  on our association (newsletters, flyers, etc.) you can find in the download section of our homepage!           … Read more…

Application for research grants now open!

The Myotubular Trust has just opened the call for research projects on centronuclear myopathies. All information (incl. the application forms) can be found on its website. This Seventh Call For Projects will require completed applications by 1700 hours GMT Wednesday 30th November 2016. The awards will be given by May / June 2017. Before, the … Read more…

Please support our association!

ZNM – Zusammen Stark! e. V. (CNM -Together Strong!) is a small association with only 100 members in Germany and the Netherlands. To organize family conference like in Goettingen in 2015 or in Niedernhausen in 2016 and also to contribute money for research (like the 10 000 Euro donation to the Myotubular Trust) we need … Read more…