ZNM – member of the Eurordis alliance

Since November 2015  ZNM – Zusammen Stark! e. V. is member of the EURORDIS alliance. “EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 695 rare disease patient organisations in 63 countries. We are the voice of 30 million people affected by rare diseases throughout Europe.” (http://www.eurordis.org/about-eurordis) We are very pleased  to be now … Read more…

Visit to Strassbourg

Today, October 21, Emil was invited to the IGBMC (Institut de génétique et de biologie moléculaire et cellulaire. We got to know the research group of Jocelyne Laporte and Johann Böhm and  explained how life is with myotubular myopathy. Holger reports about a normal day in Emil’s life       Most of those present … Read more…