20,000 € for the research grants of the Myotubular Trust

We are very happy that on May 5, 2017 the members’ assembly of ZNM – Zusammen Stark! has decided to continue the support for the research grants of the Myotubular Trust.  After 10,000 € a year ago and 15,000 € in January 2017 this time we increased the sum again by 5,000 €. The next … Read more…

Application for research grants now open!

The Myotubular Trust has just opened the call for research projects on centronuclear myopathies. All information (incl. the application forms) can be found on its website. This Seventh Call For Projects will require completed applications by 1700 hours GMT Wednesday 30th November 2016. The awards will be given by May / June 2017. Before, the … Read more…

Please support our association!

ZNM – Zusammen Stark! e. V. (CNM -Together Strong!) is a small association with only 100 members in Germany and the Netherlands. To organize family conference like in Goettingen in 2015 or in Niedernhausen in 2016 and also to contribute money for research (like the 10 000 Euro donation to the Myotubular Trust) we need … Read more…

Donation to the Myotubular Trust

At our membership meeting on May 6 we have decided to donate € 10,000 to the Myotubular Trust, that you so kindly donated to us. This sum will be added to the money that is available for research grants for finding a cure for myotubular myopathy and other centronuclear myopathies in this year’s call. Contributing … Read more…

Film of the Myotubular Trust with German Subtitles

Here is the great film of the Myotubular Trust with German subtitles. It shows, that sponsoring research for a treatment for centronuclear myopathies in deed pays off. All this the Myotubular Trust made possible with donations! Thank you so much Myotubular Trust and donors! We co-operate closely together with our friends of the Myotubular Trust … Read more…

The Big Sunflower Projekt 2016

The Big Sunflower Project initiated by Toni Abram of the Information Point for Centronuclear and Myotubular Myopathy aims to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy by asking people to grow a sunflower. The project has given away sunflower seeds since 2011 and this raises awareness of centronuclear and myotubular myopathy … Read more…