ZNM – Zusammen Stark! e. V. announces co-operation with RYR1-foundation

ZNM – Zusammen Stark! e. V. and  the RYR-1 Foundation (Pittsburgh, PA, USA) are excited to announce a collaboration to further strengthen their shared interest in helping those with certain forms of congenital muscle disease. Thanks to our donors, ZNM- Zusammen Stark! e. V.  could recently donate 8,000 Euros to the RYR-1 Foundation, with those funds … Read more…

European Conference

On May 07. and 08., 2016 the European family conference on myotubular myopathy and other centronuclear myopathies takes place in Niedernhausen near Frankfurt, Germany. It is organized together by the Myotubular Trust and ZNM – Zusammen Stark! Information on the conference, the detailed program (incl workshops) and to the registration process you will find here.  … Read more…

Family Conference – Save-the-Date – May 7

  ZNM – Zusammen Stark! e. V. and the Myotubular Trust wil host the next family conference on myotubular myopathy and other centronuclear myopathies on May 07 in Germany near Frankfurt. More information you will find soon on our website: Family conference 2016. We hope that many of you can come!