At our membership meeting on May 6 we have decided to donate € 10,000 to the Myotubular Trust, that you so kindly donated to us. This sum will be added to the money that is available for research grants for finding a cure for myotubular myopathy and other centronuclear myopathies in this year’s call. Contributing to this call means that the money is distributed among researchers in the best possible way: The Myotubular Trust has established a system of external reviewing through a scientific board of experts. This board selects from all applications those projects with the highest benefit for our community.
One day after our decision, during the conference that we have organized with the Myotubular Trust we could hand over the check directly.
More information on the call and also on the scientific advisory board you can find on the homepage of the Myotubular Trust: http://www.myotubulartrust.com/research_programmeandgrants.htm