ZNM – Newsletter 2016 is now available – also in English!

Now, you can download our latest newsletter with reports on the conference in May, our fundraising success, latest research news, he short film on CNM/MTM we made and much more! Check out the English version here. More documents  on our association (newsletters, flyers, etc.) you can find in the download section of our homepage!           … Read more…

Visit to Strassbourg

Today, October 21, Emil was invited to the IGBMC (Institut de génétique et de biologie moléculaire et cellulaire. We got to know the research group of Jocelyne Laporte and Johann Böhm and  explained how life is with myotubular myopathy. Holger reports about a normal day in Emil’s life       Most of those present … Read more…