sunflowers

ZNM – Newsletter 2016 is now available – also in English!

Now, you can download our latest newsletter with reports on the conference in May, our fundraising success, latest research news, he short film on CNM/MTM we made and much more! Check out the English version here. More documents  on our association (newsletters, flyers, etc.) you can find in the download section of our homepage!           … Read more…

The Big Sunflower Projekt 2016

The Big Sunflower Project initiated by Toni Abram of the Information Point for Centronuclear and Myotubular Myopathy aims to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy by asking people to grow a sunflower. The project has given away sunflower seeds since 2011 and this raises awareness of centronuclear and myotubular myopathy … Read more…