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Helping Devices      Which help is there?     ACC

 

 

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Recent Posts

  • ZNM – Zusammen Stark! e. V. announces co-operation with RYR1-foundation
  • First promising results from gene therapy
  • Newsletter published
  • Forschungsstipendium an Jim Dowling
  • Clinical trial for gene therapy has begun!

Newsletter

Información en español

Miopatía miotubular información en español

Miotubularna miopatija hrvatski rječnik

Informacija na hrvatski - Miotubularna miopatija

 

Miopatia Myotubulare informazione en Italiano

Cos’è la Miopatia Miotubulare ?

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IBAN: DE33 2789 3760 2051 0918 00

BIC: GENODEF1SES

THANK YOU! #TogetherEvenStronger

We are the German association for centronuclear myopathies

Our objectives are:

  • Giving families a voice!
  • Sharing information about CNM and the latest Research!
  • Sponsor   grants for research on a cure!
  • Networking with other organizations!
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