Audentes Therapeutics asked us to remind you about the RECENSUS Study, which was presented that the Conference in Göttingen: Until now only a few German families have registered for this study. If you are interested in participating please contact: Sabine de Chastonay, PhD (firstname.lastname@example.org).
The first “Request for Grant Application” was published today by the RYR1 Foundation to find a treatment for the centronuclear myopathie RYR-1. Congratulations!
This group in German language gives the opportunity to communicate and exchange ideas with other affected families in a protected space. This group is managed by the Association CNM – Together Strong!
The fourth MTM-CNM Family Conference will be held in Chicago on July 24-26, 2015. Holger Fischer will participate at the conference representing our Association. He will meet families and scientist and for sure will come back with a lot of new information and ideas. In case you have questions that you want to address at this … Read more…
We founded the Association ZNM – strong together! during the family reunion in Göttingen. At the moment we are filling in our webpage with valuable information for you and we have created a new logo. Above you can see it!