You can now also donate to ZNM – Zusammen Stark! e. V. via the online platform betterplace.org. Just follow the button on the right. All descriptions on betterplace are in English an German! You can use direct debit, your credit card, paypal or giropay. Thank you for your donation!
If you klick on the logo you will be recireted to the portal “gooding”. There, you can select shops for online buying. Without extra cost for you, gooding will receive a comission. A part of this comission will be forwarded to our organization ZNM – Zusammen Stark! e. V.
Audentes Therapeutics asked us to remind you about the RECENSUS Study, which was presented that the Conference in Göttingen: Until now only a few German families have registered for this study. If you are interested in participating please contact: Sabine de Chastonay, PhD (firstname.lastname@example.org).
The first “Request for Grant Application” was published today by the RYR1 Foundation to find a treatment for the centronuclear myopathie RYR-1. Congratulations!
This group in German language gives the opportunity to communicate and exchange ideas with other affected families in a protected space. This group is managed by the Association CNM – Together Strong!
The fourth MTM-CNM Family Conference will be held in Chicago on July 24-26, 2015. Holger Fischer will participate at the conference representing our Association. He will meet families and scientist and for sure will come back with a lot of new information and ideas. In case you have questions that you want to address at this … Read more…
We founded the Association ZNM – strong together! during the family reunion in Göttingen. At the moment we are filling in our webpage with valuable information for you and we have created a new logo. Above you can see it!