Thank you so much for buying via gooding and donating in this way to our organization! In this way, last year 73 supporters have raised 350 Euros for ZNM – Zusammen Stark! e. V. ! You can install a toolbar to remind you in any online shop of the possibility of buying via gooding. In … Read more…
Since November 2015 ZNM – Zusammen Stark! e. V. is member of the EURORDIS alliance. “EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 695 rare disease patient organisations in 63 countries. We are the voice of 30 million people affected by rare diseases throughout Europe.” (http://www.eurordis.org/about-eurordis) We are very pleased to be now … Read more…
We participate in a contest of the R+V-insurance. The 5 prjects with the most votes will be co-funded by the insurance! Please support us! Just follow the link and vote for ZNM – Zusammen Stark! e. V. ! Thank you!
Here is a message from the Italian MTM-CNM families: 14 and 15 November 2015 … a weekend to remember for Italian MTM-CNM families. Following the example of many MTM families all over the world we decided to meet each other. We spent a whole weekend in Florence. We are few, but it is only the … Read more…
Our first Newsletter is available here (up to now, we have only a German version):
Today, October 21, Emil was invited to the IGBMC (Institut de génétique et de biologie moléculaire et cellulaire. We got to know the research group of Jocelyne Laporte and Johann Böhm and explained how life is with myotubular myopathy. Holger reports about a normal day in Emil’s life Most of those present … Read more…
You can now also donate to ZNM – Zusammen Stark! e. V. via the online platform betterplace.org. Just follow the button on the right. All descriptions on betterplace are in English an German! You can use direct debit, your credit card, paypal or giropay. Thank you for your donation!
If you klick on the logo you will be recireted to the portal “gooding”. There, you can select shops for online buying. Without extra cost for you, gooding will receive a comission. A part of this comission will be forwarded to our organization ZNM – Zusammen Stark! e. V.