On June 6 2015 ZNM – Zusammen Stark! e. V. was founded during the family conference in Göttingen! Thus, today is our first birthday!
We have achieved some thoings already during the first 12 months…
- our first conference in Göttingen,
- ZNM is member of Eurordis, of orphanet, an of the TREAT-NMD Neuromuscular Network
- we have issued a Newsletter and further information on our organization
- ZNM receives money from donations at betterplace, Online shopping via Gooding and Internet searching via benefind
- With your help we could hand over a € 10,000 check to the Myotubular Trust
- and we had enough resources to organize in close co-operation with the Myotubular Trust an international family conference this year in May
And for the next year we have still some plans…
For this occasion we thought we give a small present to the community: the official release of our first movie! (ok, short film)
Special thanks to all who contributed to it: off voice René Wagner, scientific advisor Johann Böhm, IGBMC, and Clemens Maucksch, film producer who all volunteered!
An English version (and other languages) of this film will be available in short time.