You can now also donate to ZNM – Zusammen Stark! e. V. via the online platform betterplace.org. Just follow the button on the right. All descriptions on betterplace are in English an German! You can use direct debit, your credit card, paypal or giropay. Thank you for your donation!
Audentes Therapeutics asked us to remind you about the RECENSUS Study, which was presented that the Conference in Göttingen: Until now only a few German families have registered for this study. If you are interested in participating please contact: Sabine de Chastonay, PhD (firstname.lastname@example.org).
The first “Request for Grant Application” was published today by the RYR1 Foundation to find a treatment for the centronuclear myopathie RYR-1. Congratulations!
The fourth MTM-CNM Family Conference will be held in Chicago on July 24-26, 2015. Holger Fischer will participate at the conference representing our Association. He will meet families and scientist and for sure will come back with a lot of new information and ideas. In case you have questions that you want to address at this … Read more…