Another approval for clinical trials for centronuclear myopathies

Today, the Medicines and Healthcare products Regulatory Agency (MHRA) has approved clinical trials of the drug DYN101. This drug regulates the production of the enzyme dynamin 2 in the body. This could lead to an improvement in the symptoms of people with various centronuclear myopathies (CNM) (those with mutations in the genes MTM1 and DNM2). … Read more…

Overview on our association

We have created a new poster with the important facts of our association. Take a look! Since our foundation in June 2015 until February 2019, the number of members has risen sharply from 28 to 133 people. We represent people from Germany, the Netherlands and Austria. More than two-thirds of our members have a MTM1 … Read more…

ZNM – Zusammen Stark! e. V. announces co-operation with RYR1-foundation

ZNM – Zusammen Stark! e. V. and  the RYR-1 Foundation (Pittsburgh, PA, USA) are excited to announce a collaboration to further strengthen their shared interest in helping those with certain forms of congenital muscle disease. Thanks to our donors, ZNM- Zusammen Stark! e. V.  could recently donate 8,000 Euros to the RYR-1 Foundation, with those funds … Read more…

20,000 € for the research grants of the Myotubular Trust

We are very happy that on May 5, 2017 the members’ assembly of ZNM – Zusammen Stark! has decided to continue the support for the research grants of the Myotubular Trust.  After 10,000 € a year ago and 15,000 € in January 2017 this time we increased the sum again by 5,000 €. The next … Read more…

Family Meeting 2017

The Annual General Meeting and Family Conference of the association CNM – Together Strong! e.V. will take place from May, 5th to 7th in Tambach, Thuringia-Germany. This time, the conference will be only in German language. Here you can find information about the program and application form. We are looking forward to seeing you again! … Read more…

Donation to the Myotubular Trust

At our membership meeting on May 6 we have decided to donate € 10,000 to the Myotubular Trust, that you so kindly donated to us. This sum will be added to the money that is available for research grants for finding a cure for myotubular myopathy and other centronuclear myopathies in this year’s call. Contributing … Read more…

European Conference

On May 07. and 08., 2016 the European family conference on myotubular myopathy and other centronuclear myopathies takes place in Niedernhausen near Frankfurt, Germany. It is organized together by the Myotubular Trust and ZNM – Zusammen Stark! Information on the conference, the detailed program (incl workshops) and to the registration process you will find here.  … Read more…

Family Conference – Save-the-Date – May 7

  ZNM – Zusammen Stark! e. V. and the Myotubular Trust wil host the next family conference on myotubular myopathy and other centronuclear myopathies on May 07 in Germany near Frankfurt. More information you will find soon on our website: Family conference 2016. We hope that many of you can come!