The Big Sunflower Projekt 2016

The Big Sunflower Project initiated by Toni Abram of the Information Point for Centronuclear and Myotubular Myopathy aims to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy by asking people to grow a sunflower. The project has given away sunflower seeds since 2011 and this raises awareness of centronuclear and myotubular myopathy in two ways, firstly by sending seeds to people who have never heard of centronuclear and myotubular myopathy and secondly by displaying photos of the project sunflowers online. To learn more about the project visit their Website: 

or follow the Project on Facebook : Unbenannt


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